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Brockton teen takes stand against rare disease with lemonade stand
Brockton teen takes stand against rare disease with lemonade stand
It was a sweet and sour day for Bayleigh Westerlund and her friends in Brockton Saturday as they ran a lemonade stand to raise money for those stricken by a rare disease.The Enterprise said Westerland, 16, and her friends stood in the front yard of her home on Cashman Road selling cups of lemonade, apple cider, iced tea and treats like cookies and brownies.It was their seventh year in a row operating the stand as a way to raise funds to help find a cure for Tay-Sachs disease, a rare genetic disorder.The disease causes progressive neurological deterioration, which can lead to death.
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Teens raise money after 4-year-old cousin dies of rare disease
Teens raise money after 4-year-old cousin dies of rare disease
by: Kacie Yearout Updated: Sep 18, 2016 - 6:19 PMBROCKTON, Mass.- A 15-year-old's heart was with her young cousin as she served up cups of lemonade in Brockton Saturday."He always had spikey hair, the bluest eyes and the longest eye lashes...he inspired so many without even saying word," she said.>>RELATED: Local students crown teen who suffers from rare disorder homecoming kingBayleigh Westerlund and her best friend decided to start an annual lemonade fundraiser after Dylan Manning, her cousin, passed away from a rare genetic disorder called Tay-Sachs.
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Manitoba boy battles rare disease
Manitoba boy battles rare disease
Gimli's Keely Schellenberg lives in fear that her son will not make it to adulthood.Brandon was diagnosed with a mitochondrial disease (Short-Chain Enoyl Coenzyme-A Hydratase-1 Deficiency) when he was one.There are many mitochondrial diseases, caused by a genetic defect that can lead to organ and body system failure."Brandon is embarking on the hardest, most dangerous and painful period of a Mito kid's life," Schellenberg said by email recently.
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