Stranger Things: Gaten Matarazzo shares details of rare disease : ew

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Stranger Things: Gaten Matarazzo shares details of rare disease

Stranger Things: Gaten Matarazzo shares details of rare disease

This article originally appeared on PEOPLE.com.Gaten Matarazzo has been a fan favorite as loveable sidekick Dustin on Netflix's supernatural hit show Stranger Things, and his newfound popularity has also given him the platform to speak openly about living with cleidocranial dysplasia.The rare genetic disorder affects the development of bones and teeth, and can be of varying severity."There's a one in a million chance that you have of getting it – most likely you get it from a parent, but it just happened for me," Matarazzo, 14, tells PEOPLE.


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Horizon swoops on Raptor to add rare disease products

Horizon swoops on Raptor to add rare disease products

Ireland's Horizon Pharma has bolstered its position in orphan diseases with an $800m agreement to buy Raptor Pharmaceutical of the US.The deal gives Horizon two new orphan medicines - Procysbi (cysteamine bitartrate) for the treatment of the metabolic disease nephropathic cystinosis and recently launched Quinsair (aerosolised levofloxacin) for respiratory infections in patients with cystic fibrosis.Horizon chief executive Timothy Walbert said the deal strengthens his company's US rare disease business and "provides a platform to expand out orphan business in Europe and other key international markets".Rare disease drugs already account for around 45% of its total turnover.


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What is cleidocranial dysplasia, the rare disease affecting Stranger Things' star?

What is cleidocranial dysplasia, the rare disease affecting Stranger Things' star?

To continue reading, please turn off your ad blocker or whitelist us .Gaten Matarazzo, one of the lead actor's from Netflix's popular supernatural series Stranger Things, has opened-up about living with a rare genetic disorder known as cleidocranial dysplasia.In the process, he has raised awareness of a disease which for long had remained in the shadows and has boosted the confidence of fans suffering from it.Cleidocranial dysplasia (CCD) is a congenital genetic disorder – it occurs from birth and is inherited.